I had a normal pregnancy and delivery with Marcus. At around three months we knew something was not right as Marcus' muscles were extremely weak and he was like a rag doll. The doctors were concerned about his rapid head growth. Three years later and lots of tests, MRI's, cat scans and a muscle biopsy, Marcus was diagnosed with Bannayan Riley Ruvalcaba syndrome. This has been a whole different world than what we expected with a boy. Marcus is about on a K level overall. He is not active in sports like most boys his age. He is in therapy bi weekly and has been in therapy up to three times a week at times since he was eleven months.
I cannot imagine Marcus any other way! He is ALWAYS happy and loves everybody! We are so blessed and grateful to have Marcus entrusted to us for his time on earth.
HAPPY BIRTHDAY TO OUR SWEET MARCUS!!
|HE LOVED SNORKELING IN THE BAHAMAS THIS YEAR|
|WIND BLOWN HAIR|
|AT THREE YEARS. YOU CAN TELL THE MAIN VISIBLE SYMPTOM, HIS ENLARGED HEAD. HE IS GROWING INTO IT NOW.|
|MARCUS AND UNCLE TERRY AT TERRY'S WEDDING!|